Comments on: Mulley and Markham on MS http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/ Invisible people have invisible rights Tue, 31 Jan 2012 15:55:22 +0000 http://wordpress.org/?v=2.8.6 hourly 1 By: Sabrina Dent http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910742 Sabrina Dent Tue, 09 Sep 2008 11:56:51 +0000 http://www.mulley.net/?p=4253#comment-910742 I thought it a smashing piece, but FAR more important than that: you look smokin' hot. I am, however, truly surprised to find so many people have chosen to hide their diagnosis. I find that troubling. I can understand the reasons I am assuming are behind that decision, but the fact that something as broad in presentation as MS makes people fear for their employment, ability to get a mortgage and/or social life is disturbing. Your diagnosis certainly didn't change the way I see you, except I am more inclined to bark at you to get more sleep (because clearly that's any of my business). And sure, who doesn't like being shouted at? I thought it a smashing piece, but FAR more important than that: you look smokin’ hot. I am, however, truly surprised to find so many people have chosen to hide their diagnosis. I find that troubling. I can understand the reasons I am assuming are behind that decision, but the fact that something as broad in presentation as MS makes people fear for their employment, ability to get a mortgage and/or social life is disturbing.

Your diagnosis certainly didn’t change the way I see you, except I am more inclined to bark at you to get more sleep (because clearly that’s any of my business). And sure, who doesn’t like being shouted at?

]]> By: Sarah http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910724 Sarah Tue, 09 Sep 2008 00:55:49 +0000 http://www.mulley.net/?p=4253#comment-910724 That was a great article. I only found out last thursday I have MS and am still coming to terms with it. Good to know how other fair out when they get the news too. Again what comes up, is the delay in the actual finding out. I was seen by a neurologist in Cork who only tested me for Carpo Tunnell Syndrome - and lacked the investigation into symptoms. I have since been diagnosed in the US which took a fraction of the time. Thank you for sharing your story - still shows us that that the health system is a mess. Here is to better days ahead. God Bless. That was a great article. I only found out last thursday I have MS and am still coming to terms with it. Good to know how other fair out when they get the news too. Again what comes up, is the delay in the actual finding out. I was seen by a neurologist in Cork who only tested me for Carpo Tunnell Syndrome – and lacked the investigation into symptoms. I have since been diagnosed in the US which took a fraction of the time. Thank you for sharing your story – still shows us that that the health system is a mess. Here is to better days ahead. God Bless.

]]> By: tipster http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910716 tipster Mon, 08 Sep 2008 16:58:37 +0000 http://www.mulley.net/?p=4253#comment-910716 <i>“invisible people have invisible” rights</i> Which reminds me that I constantly forget you have MS. Which then prompts me to wonder is that forgetfulness because I read only read your blog (and the very rare bumping into you at election counts) or because it is being shut out of my mind. A bit like the "I don't see you as Black" that is sometimes cited about oh-so liberal and with-it people about their Black friends. (And then, there is the related thread about the schools' line "[His | Her] being gay makes no difference". “invisible people have invisible” rights

Which reminds me that I constantly forget you have MS. Which then prompts me to wonder is that forgetfulness because I read only read your blog (and the very rare bumping into you at election counts) or because it is being shut out of my mind. A bit like the “I don’t see you as Black” that is sometimes cited about oh-so liberal and with-it people about their Black friends. (And then, there is the related thread about the schools’ line “[His | Her] being gay makes no difference”.

]]> By: Clare http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910707 Clare Mon, 08 Sep 2008 13:20:38 +0000 http://www.mulley.net/?p=4253#comment-910707 <i>Remember you are not living with MS – MS is living with you!</i> nice sentiment from Grannymar. the article comes across really well, a credit to you both. Remember you are not living with MS – MS is living with you!

nice sentiment from Grannymar. the article comes across really well, a credit to you both.

]]> By: Sinéad http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910705 Sinéad Mon, 08 Sep 2008 11:41:44 +0000 http://www.mulley.net/?p=4253#comment-910705 You're right about the cut paragraphs - it did seem to end out of nowhere, but great piece. I recognised your mug straight off when i flicked the paper open to do post roast. Ah boss, I'm proud :) You’re right about the cut paragraphs – it did seem to end out of nowhere, but great piece. I recognised your mug straight off when i flicked the paper open to do post roast. Ah boss, I’m proud :)

]]> By: heather http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910703 heather Mon, 08 Sep 2008 11:17:22 +0000 http://www.mulley.net/?p=4253#comment-910703 Wow. That was a great article. Thank you... it's given me pause for appreciating health- we live in a delicate balance. Best wishes to you and your family. Wow. That was a great article. Thank you… it’s given me pause for appreciating health- we live in a delicate balance. Best wishes to you and your family.

]]> By: Trinity http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910696 Trinity Mon, 08 Sep 2008 10:42:22 +0000 http://www.mulley.net/?p=4253#comment-910696 Great article Damien. Mulley on the Rocks - great pic! :) Great article Damien.
Mulley on the Rocks – great pic! :)

]]> By: JohnMRyan http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910695 JohnMRyan Mon, 08 Sep 2008 09:45:19 +0000 http://www.mulley.net/?p=4253#comment-910695 Hi Damien, Thanks for sharing your story. John Hi Damien,

Thanks for sharing your story.

John

]]> By: Grannymar http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910694 Grannymar Mon, 08 Sep 2008 09:09:38 +0000 http://www.mulley.net/?p=4253#comment-910694 31 + ¾, sure you are only a boy. Wait until you reach my age! Damien that article of yours ‘outing’ MS will help many people you know and many more you don’t. Remember you are not living with MS – MS is living with you! Keep well. It was good to chat with you on Saturday. 31 + ¾, sure you are only a boy. Wait until you reach my age!

Damien that article of yours ‘outing’ MS will help many people you know and many more you don’t. Remember you are not living with MS – MS is living with you! Keep well.

It was good to chat with you on Saturday.

]]> By: cgarvey http://www.mulley.net/2008/09/07/mulley-and-markham-on-ms/comment-page-1/#comment-910693 cgarvey Mon, 08 Sep 2008 07:27:59 +0000 http://www.mulley.net/?p=4253#comment-910693 'grats on the article, and bravo for the openness (not just in the article). Many people will benefit from it, even if you never know it. ‘grats on the article, and bravo for the openness (not just in the article). Many people will benefit from it, even if you never know it.

]]>